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Consumer health
informatics: an overview of patient perspectives on health
information needs
Aditi Dey [
PDF ]
Abstract
Patients are increasingly expressing their need for more
information about their health. Different healthcare professionals
provide a range of information to their patients during delivery
of care. By means of a detailed literature search and a study of
available evidence, this article explores patients’ perspectives
in gaining health-related information from the healthcare system,
with particular emphasis on patients who come in contact with
breast cancer services.
The literature
review indicates that the main issues concerning health
information available to consumers can be divided into the
following sections: quantity of information (amount of
information, number of sources, types and strategies for
distribution); quality of information (validity, relevance,
accessibility, understandability, timing of acquisition); and
consumer/patient factors (age, health status, empowerment to make
decisions). Information-seeking behaviour of consumers should be
considered as part of a broader environmental and role-related
context. The acquisition of information and the decision to seek
information (either personally or using the help or services of
other people) is affected by stress, perception of risk, hope for
reward and perceived level of self-efficacy.
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