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Non-government
sector Mental Health Data Dictionary and Standard Data Set
Christie Wood and Duane Pennebaker [ PDF
]
Abstract
In order to provide a framework for standardised data reporting in
the Australian non-government community mental health sector, a Data
Dictionary and standard data set were developed. Advisory Committee
and key stakeholder consultation, review of local and national
minimum data sets and stakeholder validation informed this process.
This resulted in a Data Dictionary containing 37 items and a
standard data set containing 15 items. These items conform to the
Australian Institute of Health & Welfare’s (AIHW)
standards and address Leginski
et al.’s (1989) decision standards.
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Regulating genetic
privacy in the online health information era
Roger S Magnusson [ PDF
]
A version of
this paper was delivered at the Centre for Law and Genetics,
University of Tasmania, 10 December 2001.
Abstract
As the clinical implications of the genetic components of disease
come to be better understood, there is likely to be a significant
increase in the volume of genetic information held within clinical
records. As patient health care records, in turn, come on-line as
part of broader health information networks, there is likely to be
considerable pressure in favour of special laws protecting genetic
privacy. This paper reviews some of the privacy challenges posed by
electronic health records, some government initiatives in this area,
and notes the impact that developments in genetic testing will have
upon the ‘genetic content’ of e-health records. Despite the
sensitivity of genetic information, the paper argues against a
policy of ‘genetic exceptionalism’, and its implications for
genetic privacy laws.
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