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Validating
notifications of pregnancy terminations for birth defects before 20
weeks gestation
Merilyn Riley, Jenny Howard, Kristen Dale, Sonia Palma and Jane
Halliday [ PDF
]
Abstract
The Victorian Perinatal Data Collection Unit (PDCU) maintains a
Birth Defects Register (BDR), including data on terminations of
pregnancy for birth defects before 20 weeks. This study aimed to
validate the completeness of reporting, and accuracy of diagnoses
provided by hospitals on these terminations.
From 1995-1999, 13
hospitals notified 321 terminations to the PDCU. An additional 41
cases were found through this study. For matched cases (n=273),
199 (73%) had comparable diagnoses, 21 (8%) had different and 53
(19%) had additional diagnoses. Discrepancies arose because of
problems with correct identification of relevant cases and lack of
understanding of the importance of including all information on
multiple birth defects.
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A preliminary
analysis of differences in coded data from Australia and Maryland
Beth Reid, Zoe Kelly and Johanna Westbrook [ PDF
]
Abstract
Hospital discharge data from Maryland in the United States have many
more diagnosis and procedure codes compared with coded data from
Australia. In order to investigate the source of these additional
codes, we analysed 4000 records from each country. There were few
differences in the two samples for age, sex or number of deaths. For
procedures, an important source of difference was that Maryland
coders used many more diagnostic and non-surgical codes compared
with Australian coders. Despite significant differences for many of
the disease categories, it was not possible to learn many lessons
from the Maryland data because nearly half of these codes were not
related to the categories we selected for the study. For diagnoses,
further work is needed to understand the differences in the number
of codes used in the two countries.
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